A Qualitative Assessment of Program Characteristics for Preventing Secondary Conditions in Individuals with Fetal Alcohol Spectrum Disorders

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Christie LM Patrenko
Naira Tahir
Erin C Mahoney
Nancy P Chin


Fetal alcohol spectrum disorders, fetal alcohol syndrome, secondary conditions, prevention, intervention, qualitative methods



Fetal alcohol spectrum disorders (FASD) are a major public health problem that affects 2 to 5 percent of the population. Individuals with FASD are at high risk for secondary conditions , such as mental health problems, school disruptions, and trouble with the law. Evidence - based intervention programs are needed to prevent and treat secondary conditions in this population.


The purpose of this study was to identify intervention program characteristics for preventing secondary conditions in individuals with FASD from the perspectives of parents and service providers. Methods This qualitative study utilized a phenomenological approach to identify program characteristics for preventing secondary conditions . Twenty - five parents of children (ages 3 t o 33) with FASD and 18 service providers participated in focus groups or individual interviews. Data was systematically analyzed using a framework approach. Themes did not differ by participant type.


Participants emphasized five primary characteristics of intervention programs for individuals with FASD. Programs need to 1) be avail able to individuals across the lifespan, 2) have a prevention focus , 3) be individualized, 4) be comprehensive, and 5 ) be coordinated across systems and developmental stages. Participants discussed a variety of specific intervention strategies for each developmental stage and setting.


Program characteristics identified in t his study are consistent with a positive behavior support framework. This framework is discussed in the context of research on existing interventions for individuals with FASD, and recommendations for future intervention development and evaluation are highlighted.

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1. May PA, Gossage JP, Kalberg W O , et al . Prevalence and epidemiologic characteristics of FASD from various research methods with an emphasis on recent in - school studies. Dev Disabil Res Rev 2009;15: 176 - 192.
2. Riley EP, McGee C L . Fetal alcohol spectrum disorders: an overview with an emphasis on changes in brain and behavior. Exp Biol Med 2005;230: 357 - 365.
3. Petrenko CLM , Tahir N, Mahoney EC, Chin N P. Prevention of secondary conditions in fetal alcohol spectrum disorders: identification of systems - level barriers. Matern Child Hea lth J 2013; doi : 10.1007/s10995 - 013 - 1390 - y .
4. Malbin D. Trying Differently Rather than H arder : Fetal Alcohol Spectrum Disorders . 2nd edition. Portland, Oregon: Tectrice, Inc. , 2002.
5. Streissguth AP, Barr HM, Kogan J, Bookstein FL. Final report: Understanding the occurrence of secondary disabilities in clients with fetal alcohol syndrome (FAS) and fetal alcohol effects (FAE). Seattle, WA: University of Washington Publication Services , 1996 .
6. Streissguth AP, Bookstein FL, Barr HM, Sampson PD, O’Malley K, Kogan Young J . Risk f actors for adverse life outcomes in fetal alcohol syndrome and fetal alcohol effects. J Dev Behav Pediatr, 2004;25: 228 - 238.
7. Pope C, Ziebland S, Mays N. Qualitative research in health care: analysing qualitative data. BMJ Open 2000;320: 114 - 116.
8. Carr EG, Dunlap G, Horner RH, et al. Positive behavior support: evolution of an applied science. J Posit Behav Interv 2002;4:4 - 20.
9. Koegal LK, Koegal RL, & Dunlap G. Positive Behavioral Support: Including People with Difficult Behavior in the Community. Baltimo re: P. H. Brookes, 1996.
10. Paley B, O’Connor MJ. Intervention for individuals with fetal alcohol spectrum disorders: treatment approaches and case management. Dev Disabil Res Rev 2009;15: 258 - 267.
11. Greenberg MT, Domitrovich C, Bumbarger B. The prevention of mental disorders in school - aged children: current state of the field. Prevention & Treatment, 2001;4: 1 - 62.
12. Nation M, Crusto C, Wandersman A , et al. What works in prevention: principles of effective prevention programs. American Psychologist 2003;58: 449 - 456.