FETAL ALCOHOL SPECTRUM DISORDERS AND CHALLENGES FACED BY CAREGIVERS: CLINICIANS’ PERSPECTIVES

Main Article Content

Jonathan Baskin
Jolie R. Delja
Catherine Mogil
Clarissa M. Gorospe
Blair Paley

Keywords

Professional perspectives, fetal alcohol spectrum disorders, intervention development

Abstract

Background


There is a notable absence of evidence based early interventions for young children with FASD.


Objective


This study examines clinicians’ perspectives regarding the needs of caregivers of children with FASD and how such perspectives informed the development of a family - centered early intervention for young children with prenatal alcohol exposure.


Method


19 professionals who work with children with prenatal alcohol exposure and / or in out - of - home care were recruited to participate in focus groups. The facilitator used a semi - structured topic guide to elicit feedback from participants. These data we re transcribed, coded, and categorized to reflect themes in a manner informed by a grounded theory approach. A second investigator repeated the process. Codes were chosen and assigned to data by consensus.


Results


The coded data yielded five distinct pe rceived challenges faced by caregivers: (1) seeking and possibly receiving a diagnosis; (2) processing emotions and coming to terms with the child’s difficulties; (3) seeking support and belonging within a knowledgeable community; (4) developing a new unde rstanding of the child’s behavior; and (5) becoming an educator, advocate, and expert on the child and FASD.


Conclusion


Professionals believe specific capacities are essential insofar as the human service systems that caregivers engage are perceived to be under - equipped to respond to the distinct set of challenges faced by children with FASD and their families. Findings are discussed in terms of how the proposed intervention was designed to address such challenges and to cultivate those key capacities in order for families to meet their children’s needs.

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