Main Article Content
RURAL FASD DIAGNOSTIC, FETAL ALCOHOL, SPECTRUM DISORDER
There are few FASD multi-disciplinary diagnostic teams in rural regions of Canada. Families often have difficulty accessing their services because of the lack of clinics available in Canada and the distance rural residents must travel to access one. Since its grass-roots beginning in 1995, the Lakeland Centre for FASD in north eastern Alberta has developed a community-based FASD diagnostic services model that utilizes the resources available in local communities and enhances the support to individuals and families living far away from urban centers. The article describes the history of the Lakeland Centre for FASD relative to the development of the model and diagnostic process used to diagnose children and adults. Rural adaptations to similar urban models are discussed. Critical elements to rural, in-kind services are also discussed along with ongoing challenges. Acknowledging the change in terminology over the years covered by this article, the term FASD (Fetal Alcohol Spectrum Disorder) is used throughout.
2. Jones KL, Smith DW. Recognition of the fetal alcohol syndrome in early infancy. Lancet 1973;2(7836):999–1001.
3. Stratton K, Howe C, Battaglia FC. Fetal alcohol syndrome: diagnosis, epidemiology, prevention, and treatment. Institute of Medicine and National Academy Press, Washington, D.C., 1996.
4. Astley SJ, Clarren SK. Diagnostic guide for fetal alcohol syndrome and related conditions: the 4- Digit Diagnostic Code. 3rd ed. University of Washington Publication Services, Seattle, WA,2004.
5. Chudley AE, Conry J, Cook J, Loock C, Rosales T, LeBlanc N. Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis. Canadian Medical Association Journal (CMAJ) 2005;172.
6. Astley SJ. Fetal Alcohol Syndrome Facial Photographic Analysis Software. FAS Diagnostic & Prevention Network, University of Washington, Seattle, WA, 2003.
7. McFarlane, H. Simon Says: A book about FAS for kids, parents and teachers. Lakeland Centre for FASD, Cold Lake, Alberta, 2003.
8. McFarlane, H. Polly Anna the Second: A book about FASD for teens. Lakeland Centre for FASD, Cold Lake, Alberta.