A research study on Quality of life of people living with marfan syndrome
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Keywords
quality of life, marfan syndrome, psychology.
Abstract
OBJECTIVE: Genetically determined multiorgan illness Marfan syndrome (MFS) causes significant physiological and psychosocial deficits in adults. There is limited consensus about QOL in those with MFS. The present study looked at the quality-of-life QOL of a sample of MFS patients. METHODS: At the Mayo hospital, Lahore patient-reported results measures from 102 individuals with
MFS having mean age of 39.3 years and standard deviation of 13.1 years being 40.2% female were retrospectively examined and compared to those people who had different congenital cardiac abnormalities. The improved five-level EQ-5D was used to evaluate QOL. RESULTS: The variations between the two populations were investigated. Individuals with MFS reported a general decline in QOL. Those with MFS rated considerably lower on the aspects of pain, anxiety, mobility, and normal activities compared to CHD patients (P 0.05).
References
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