A STUDY OF CHALLENGES FACED BY PARENTS OF CHILD DIAGNOSED WITH AUTISM SPECTRUM DISORDER (ASD)
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Abstract
Autism spectrum disorders (ASD) are a diverse group of conditions. They are characterized by some degree of difficulty with social interaction and communication. Other characteristics are atypical patterns of activities and behaviours, such as difficulty with transition from one activity to another, a focus on details and unusual reactions to sensations.
The abilities and needs of autistic people vary and can evolve over time. While some people with autism can live independently, others have severe disabilities and require life-long care and support. Autism often has an impact on education and employment opportunities. In addition, the demands on families providing care and support can be significant. Societal attitudes and the level of support provided by local and national authorities are important factors determining the quality of life of people with autism
References
2. Australian Journal of teachers Education :Understanding Social-Emotional Reciprocity in Autism: Viewpoints Shared by Teachers Lizaan Schwartz Griffith University, Australia, Autism speak :https://www.autismspeaks.org/pervasive-developmental-disorder-pdd-nos
3. Abidin, R. R. (1990). Parenting Stress Index. Odessa, FL: Psycho- logical Assessment Resources.
4. Annelies de Bildt, Sjoerd sytema, Dirk Kraijer, and Ruud Minderaa(2005). Prevalence of pervasive developmental disorders in children and adolescents with mental retardation.Journal of child Psychology and Psychiatry 46:3, pp275-286.
5. Bagenholm, A., & Gillberg, C. (1991). Psychosocial effects on siblings of children with autism and mental retardation: a population based study. Journal of Mental Deficiency Research, 35, 291-307.
6. Bass, J. D., & Mulick, J. A. (2007). Social play skill enhancement of children with autism using peers and siblings as therapists. Psychology in the schools, 44(7), 727-735
7. Beyer, J. F. (2009). Autism Spectrum Disorders and Sibling Relationships: Research and Strategies. Education and Training in Developmental Disabilities, 444- 452. https://autismsociety.org/resources/public-policy/
8. Borte Gurbuz Ozgur, Hatice Aksu, Erhan Eser (2018) Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder Indian Journal of Psychiatry:60, (3),278-285
9. Bougeard C, Picarel-Blanchot F, Schmid R, Campbell R, Buitelaar J. (2021) Prevalence of Autism Spectrum Disorder and Co-morbidities in Children and Adolescents: A Systematic Literature Review. Frontiers in psychiatry.1834.
10. Bravo-Benítez J, Perez-Marfil MN, Roman-Alegre B, Cruz-Quintana F. (2019) Grief experiences in family caregivers of children with autism spectrum disorder (ASD). International journal of environmental research and public health: 16, (23),4821.
11. Center for disease control and prevention :https://www.cdc.gov/mmwr/pdf/ss/ss5810.pdf Canter for disease control CDC. (2021, April 29). Autism Spectrum Disorder (ASD). Retrieved August 19, 2021,
12. CDC: https://www.cdc.gov/ncbddd/autism/index.html Chinitz, S. P. (1981). A sibling group for brothers and sisters of handicapped children. Children Today, 21-24.
13. Cicirelli, V. (1995). Family structure and interaction: sibling effects on socialisation. In. M. McMillan & S. Sergro (Eds.), Child psychiatry: treatment and research (pp. 190-203). New York: Bruner/Maz
14. Cox, T. (1978). Stress. London: Macmillan.
15. Dietert, R.R, Dietert, J. C., Dewitt, J. C (2011). Environmental Risk Factors for Autism, Emerg. Heath Threats J., 2011, 4:10:3402/ehtj.v4i0.7111
16. Early intensive behavioural intervention (EIBI) for young children with autism spectrum disorders (ASD),Brian Reichow, Kara Hume, Erin E Barton, Brian A Boyd, and Cochrane Developmental, Psychosocial and Learning Problems Group https://www.ncbi.nlm.nih.gov/books/NBK470361/
17. Ghosh, M. (2015). Health Psychology: Concepts in Health and Wellbeing. New Delhi: Dorling Kindersley (India) Pvt. Ltd.
18. Habib Yaribeygi,1 Yunes Panahi,*,2 Hedayat Sahraei,1 IJAE:https://ijae.springeropen.com/articles/10.1186/s41257-023-00089w#:~:text=Research% 20further%20suggests%20that%20mothers,2009).
19. Hodgetts, Zwaigenbaum & Nicholas, 2015; Kogan et al., 2008;
20. [email protected] Wendi Beamish Griffith University, Australia Loraine McKay Griffith University, Australia,2021
21. Managing Workplace Stress. New Delhi: Sage Publications. Introduction to Stress Coleman, J. C. (1970).
22. National library of medicine https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5198437/ https://pubmed.ncbi.nlm.nih.gov/30040859/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7082249/
23. Neurosciences( Riyadh),18(1): 5863. 162 Amar Jyothi Persha, V.R.P.Sheilaja Rao(2003). Early Intrvention A service Model.
24. National Institute for the Mentally Handicapped. American Psychiatric association (2000).
25. Orsmond and Melissa M.Murphy.( 2004). Psychological well-being and coping in mothers of yoths with Autism,Down syndrome or Fragile X syndrome. Journal on Mental Retardation .Vol-109 no. 3 pp237-254.
26. Parent and family impact of autism spectrum disorders: a review and proposed model for intervention evaluation Jeffrey S Karst 1, Amy Vaughan Van Hecke S., & Cooper, C. L. (1997).
27. Thomas P. Johnston,3 and Amirhossein SahebkarThe impact of stress on body function: A review
28. Tara A Lavelle 1, Milton C Weinstein, Joseph P Newhouse, Kerim Munir, Karen A Kuhlthau, Lisa A Prosser,Economic burden of childhood autism spectrum disorders
29. The economic costs of Autism Spectrum Disorder: A literature review Nicky Rogge1 Juliette Janssen KU Leuven, Faculty of Economics and Business Warmoesberg 26, 1000 Brussels Vohra, Madhavan, & Sambamoorthi, 2017 WHO: https://www.who.int/news-room/fact-sheets/detail/autism-spectrum-disorders
30. Zuleyha Cidav, PhD, a,b Steven C. Marcus, PhD,c,d and David S. Mandell, ScDa,b Implications of Childhood Autism for Parental Employment and Earnings
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Dr. Vidhu Rajput
General Secretary, Voluntary Action Group for Differently Abled Persons (VAGDAP), (Registered under Societies registration Act of 1860, India) Since 2007
For Education Training and Empowerment of PwDs
Ex Research Officer Rehabilitation Council of India, Department of Empowerment of PwDs, Ministry of Social Justice & Empowerment, GOI, New Delhi, India
Ex Lecturer NIEPID RC NOIDA, Department of Empowerment of PwDs , M/O Social Justice and Empowerment ,GOI , New Delhi , India